March Madness!!!

Now where did we leave off...yes good mood/no appetite after 1st chemo & IVIG treatment...that week was pretty rough!  Camden was pretty weak  all week...he was getting sick and didn't have an appetite at all, Carrie couldn't even get him to eat his favorite - yogurt.  Finally, he started getting his appetite back and was definitely on his way to catching up on the missed meals!! 


He was also starting to warm up to his physical therapist...during his 1st few sessions he would cry everytime she made him switch exercises!!!  Just until he got comfortable doing it...then he would be happy!  Last week, Carrie said he was doing so good with all the exercises and was flirting with Mrs. Kristen!!  They have matted their living room floor with those big soft ABC mats so he can be in the floor with all of his toys and work on getting around again...Carrie said Thursday he stood by himself for 10 seconds and then did it again this weekend -- he is so tough and determined to get things on his own again...even though it is nice just pointing with a little grunt and having someone grab for everything in sight to see just what it is his sweetness wants!  This morning Camden had a Dr's appointment to have some blood drawn - his blood cell count was good and he had gained 2 pounds...he's back up to a whoppin' 27.4 lbs!  My friend Lindsey found out about this organization that provides little chemo ducks to chemo patients and each little duck gets a port just like it's new owner...the lady that started the foundation actually lives in Spring Hill & assured us since Camden was at Vandy he would receive a duck -- today he got his little chemo duck, Carrie said it is soo cute...even came with a little do rag!!   Please check out http://www.gabesmyheart.com/ to see more information regarding their organization!!  Carrie also got a HUGE binder full of trusted information regarding Camden's illnesses...neuroblastoma and opsoclonus myoclonus syndrome...(Auntie Robin sure got her workout carrying all that stuff all over Vandy today!!)  They have received some amazing gifts and dinners - they are so thankful for everything: your thoughts, prayers and generosity.  So, I will leave you with this 'precious moment'....

He loved the sink baths!!

Till next time,

Caca

*Watch for upcoming details on Camden's benefit...June 12...Save the Date!!

Camden's Next Steps...

Alright, where to start...1st to make you all smile with some sweet pictures of precious Camden, his 1st day home from the hospital!! 

Camden bounced back from surgery in no time!!  He is rolling around, getting the hang of crawling again and working on pulling himself up - Such an improvement and blessing!  During the next couple of weeks, Camden started physical therapy and had a portacath put in his chest.  On March 8, Rick and Carrie met with the oncologists at Vandy...Camden will start 48 weeks of treatment including 6 rounds of chemotherapy, 12 IVIG treatments and daily steroid medication.  The state came out last Friday to evaluate him - if he qualifies they will pay for all of his therapies to include physical, occupational & speech.  Camden had his 1st IVIG and chemo treatments yesterday - last night he was in a great mood, didn't have much of an appetite but was thoroughly enjoying throwing all of his balls everywhere to watch us go pick them up!!  It is definitely going to be a very long year for Camden, Rick and Carrie; and your continued thoughts and prayers are truly appreciated. 

~CaCa

**Please mark your calendars for June 12 - I am organizing a benefit for Camden and also notice I put a calendar under dinner schedule on the blog for anyone who wants to take dinner to Rick and Carrie - just click the date and add your name!!