I just got home from the hospital...this morning Camden was smiling and playing with Nana and I in the floor on his mat and had kept down about a quarter of a banana and some pedialyte! The Dr. said if he could keep down his food and have a poop they will get to come home at 6 tonight!! So, back to Thursday, they did the bone scan - the results came back negative!! Friday he was scheduled for his MIBG scan at 1...at 10ish Mom called me to tell me they were about to take him back they had a spot open and were going to be able to do it early and 90% sure would be doing surgery after that! About 11:30 they finally took him back for the scan which was over pretty quick - he came back to his room and got to sit with mommy & daddy until about 3 when they came to get him to prep for surgery. They said the surgery could take up to 3 hours but if they could do it laparoscopically that could cut the time in half...I think about 4:15 the surgery board said he was in the operating room. I believe there were 16 of us sitting in the 3rd floor waiting area when the nurse came out to tell us they were an hour in...thought they were going to be able to get it all laparoscopically and he was doing good! Finally, about 6:30 they took Rick and Carrie back for a consultation with the surgeon...they came back out with some great news!! They were able to get the whole tumor...they did have to take a few lemph nodes and his left adrenal gland...said he could possibly have to take some hormone replacements later in life but that's no big deal!! The results from the tumor and the decision of chemo or not should be found out in about a week. Rick kept asking if his neurological symptoms would go away and they kept telling him they didn't know...less than 3% of children that have neuroblastoma also have opsoclonus/myoclonus (which was the eye movement/muscle twitching/ataxia) at the same time...so his case was very rare - rare enough to be pulished?! The door opened and the nurse said the grandparents could go back to see him...then the next group which had me 1st in line!! He looked so precious sleeping on Carrie and you could tell Rick & Carrie were so relieved and so much more relaxed!
Carrie said last night was kind of rough - they finally gave him a little more pain medication and he slept good for a few hours...he woke up to Caca and Nana ready for some love!! He was absolutely adorable - smiling so big and playing with his toys...he's such a strong little man and is totally showing that he is going to bounce back from this in no time! So, I brought home all of the goodies everyone has been so wonderful to bring and unpacked everything for them in hopes they will come home to a clean house (thank you Aunt Kathy) with nothing to do but rest and take care of that sweet angel!! Thank you all agian for all of your thoughts and prayers...the power of prayer is obviously a very amazing thing...
Caca!
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